Speakers
- Deb Purcell - Event creator, MPS II Fund Director & mother to Trey Purcell
www.treypurcell.com
- Simon Ibell – Activist, inspiration and person living with MPS II
http://www.ibellieve.com & http://befair2rare.com
- Dr. Paul Moxham-Pediatric Otolaryngologist (ENT) at BC Children’s Hospital & winner of the ‘BC Children’s Hospital Family Centered Care Award’ (and Trey’s doctor as well)
Recent Blog Posts
- Online Auction to benefit MPS II Research
- Shire BRAVE Awards Recipients Announced
- Once Upon a Cure was AMAZING
- CTV’s Once Upon a Time Joins Mom on a Mission to Save Her Son’s Life
- Online auction is live- it’s AWESOME!
- Public Service Announcement from Jeffrey Bowyer Champan & Elyse Levesque
- NORTH VANCOUVER BOY FIRST IN CANADA TO RECEIVE BREAKTHROUGH DRUG
- The goods on the Gala
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@onceuponacure
- The First Year http://t.co/DgV4li7H1 week ago
- Just posted: The First Year http://t.co/Z4UUqXCf1 week ago
- Senator Hagan who introduced TREAT Act to accelerate access to treatments, visiting us @ UNC tomorrow!! http://t.co/kxBL7a6S2 weeks ago
- Only 2 days until @TheCupcakeGirls @onceuponacure charity episode May 2 @ 8pm. I can't wait to see footage from our once in a lifetime...2 weeks ago
- Can't WAIT to see @TheCupcakeGirls @onceuponacure charity episode Wed May 2 @ 8pm ET/PT on The W Network! I didn't even get a sneak peek!3 weeks ago